Do you want to have a say in healthcare services that are provided for you by the borough? We are collating your stories to get your voices heard. ‘Parent Voices’ will be a new report that is given directly to those who fund your healthcare services.
If you would like to tell us your story about raising a child with a disability within City and Hackney please get in contact with firstname.lastname@example.org
The story starts from diagnosis…all the way through to the current day. What was/is your experience? If you have had a good service we want to know, if a terrible experience we want to hear that too! All stories will remain anonymous.
Caring for a disabled child or young person can be challenging. Even the most experienced parents and carers will sometimes need someone to hear about the difficulties that they are facing on a day to day basis. By working together with families, children and young people in this way, issues can be prevented from escalating as services are adapted to the needs of the families,
Families dictate the level of contact that suits them. It’s all about what works for the individual family. Our reports and recommendations to the Clinical Commissioning Board can then offer long-term opportunities for parents to feed back. Parent Participation and Parent Carer Forums leads to better outcomes for disabled young people and their families.
Looking at Down’s Syndrome
January 16th 2018
11am until 1pm
At: The Huddleston Centre, 30 Powell Road, London, E5 8DJ
Guest speaker: Jill Ellis
Consultant Community Paediatrician, Hackney Ark
Come and join us as we learn more about what Down’s Syndrome is, what causes Down’s Syndrome and what services there are in Hackney for families needing support. Also a chance to ask questions and meet other parents.
Within this group we discuss issues that affect parents raising children with disabilities. This groups is for parents who live in City and Hackney. Parents meet and support each other in a relaxed and informal environment. Sometimes the groups are topic themed where we will discuss a specific theme. Other times we meet and try new activities like ‘learning to draw’ or ‘meditation and relaxation’
This group is able to make recommendations to the Clinical Commissioning group for City and Hackney. Giving parents a say in the services that are provided.
Are you a young person with disabilities living in City or Hackney? Do you want to have your say?
We believe that every young person should have a voice that is heard… we want to hear your views! Do you have stories to tell or maybe even an experience you would like to tell us about? How does it feel to live with a disability? Let your voice be heard! Maybe an experience about your health care or school/college? What do you want to talk about… Lets talk!!! Contact email@example.com if you would like to be involved.
Come and Join us and create your own Christmas cards. A great chance to relax and meet other parents.
Here at The Huddleston Centre on the 12th December between 11am and 1pm! Toddlers welcome!
Come along and meet other parents, Find out what services are available to you in Hackney!
20th September 11am until 1pm at The Huddleston Centre.
Short Breaks Activities! A few places remaining.
We will be running some great activities starting the 7th August, for two weeks for young people with low to moderate support needs. Please contact firstname.lastname@example.org or call us at 0208 985 9089 if you are interested!
For the second year running we are holding this great event at Hackney Empire! If you are interested in joining us please call for a registration form…there are limited spaces so be quick!
Some great images from last years Hackney Village! We had lots of fun…
Henpower is an amazing initiative where our young people get to engage with the older population of Hackney, often taking the hens out to new places to meet new people.
Our HenPower team have a great time! If you are a young person with a disability who would like to join in the fun, or someone 50+ who would like to come and volunteer on the project, we would love to hear from you!
Get in touch with Cassandra on 020 8985 9089 or email@example.com today!
Check out these lovely pictures of their amazing art…