Dear parents…

Dear parents…

Do you want to have a say in healthcare services that are provided for you in the borough? We are collating your stories to get your voices heard. ‘Parent Voices’ is a report that is given directly to those who fund your healthcare services. If you would like to tell us your story about raising a child with disability in City & Hackney, contact director@huddlestoncentre.org.uk

Stories start from diagnosis… through to the present day. What was/is your experience? If you have had a good service we want to know, if a terrible experience we want to hear that too! You will remain anonymous.

Caring for a disabled child/young person can be challenging. Even the most experienced parents and/or carers will sometimes need someone to hear about the difficulties they are facing on a daily basis. By working with families, disabled children/young people in this way, issues can be prevented from escalating as services are adapted to the needs of the families,

You dictate the level of contact to suit you. It’s all about what works for your individual family. Our reports and recommendations to the Clinical Commissioning Board can then offer long-term opportunities for parents to feedback.Your participation and Parent/Carer Support Forums leads to better outcomes for disabled young people and their families.

Looking at Down’s Syndrome

January 16th 2018
11am until 1pm

At: The Huddleston Centre, 30 Powell Road, London, E5 8DJ

Guest speaker: Jill Ellis
Consultant Community Paediatrician, Hackney Ark

Come and join us as we learn more about what Down’s Syndrome is, what causes Down’s Syndrome and what services there are in Hackney for families needing support. Also a chance to ask questions and meet other parents.

Within this group we discuss issues that affect parents raising children with disabilities. This groups is for parents who live in City and Hackney.  Parents meet and support each other in a relaxed and informal environment. Sometimes the groups are topic themed where we will discuss a specific theme. Other times we meet and try new activities like ‘learning to draw’ or ‘meditation and relaxation’

This group is able to make recommendations to the Clinical Commissioning group for City and Hackney. Giving parents a say in the services that are provided.

Are you a young person with disabilities living in City or Hackney? Do you want to have your say? 

We believe that every young person should have a voice that is heard… we want to hear your views! Do you have stories to tell or maybe even an experience you would like to tell us about? How does it feel to live with a disability? Let your voice be heard! Maybe an experience about your health care or school/college? What do you want to talk about… Lets talk!!!                           Contact anjie@huddlestoncentre.org.uk  if you would like to be involved.

Parent Group Xmas Card Making CDF

Come and Join us and create your own Christmas cards. A great chance to relax and meet other parents.

Here at The Huddleston Centre on the 12th December between 11am and 1pm! Toddlers welcome!

Refreshments provided.

Come along and meet other parents, Find out what services are available to you in Hackney!

20th September 11am until 1pm at The Huddleston Centre.

Short Breaks Activities! A few places remaining.

We will be running some great activities starting the 7th August, for two weeks for young people with low to moderate support needs. Please contact cassandra@huddlestoncentre.org.uk  or call us at 0208 985 9089 if you are interested!